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Resources 
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Click the link to be taken to the organization’s website.

 

Bee Mighty 

Provides support and resources to families before, during and after their NICU journey in the greater Charlotte, NC area.  

 

Postpartum Support International 

Offers various free support groups including a NICU Support Group. Led by trained PSI facilitators, our online NICU group is intended for parents of babies who are currently or formerly in the NICU. Connecting with others who have experienced the uniquely stressful environment of a NICU will provide parents with understanding, as well as helpful tools and resources. Whether your baby is currently in the NICU or you have finally returned home, our NICU parents support group is here for you. 

 

Hand to Hold 

Hand to Hold® is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby’s NICU stay. NICU support is available at no cost to NICU parents. 

 

Sahara’s Project 

Provides financial support for therapies. 

  

Kids with PossAbilities 

Funding therapy, assistive technology and educational scholarships for children. 

  

Madelyn’s Fund 

Our mission is to support infant and pediatric patients in the NICU and their families, as well as those who experience the trauma of infant loss. 

  

United Healthcare Children’s Grant 

UHCCF’s mission is to help fill the gap between what medical services/items a child needs and what their commercial health benefit plan will pay for. UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan. 

  

NC Early Intervention 

The Infant and Toddler Program provides support and services for families and their children, birth to three who have special needs. Research shows that this time period is critical. It offers a window of opportunity to make a positive difference in how a child develops and learns. Early Intervention works with local service providers to help families help their children succeed.​ 

North Carolina Early Intervention: Locations/Contact Info 

  

South Carolina Early Intervention 

BabyNet is South Carolina’s interagency early intervention system for infants and toddlers under three years of age with developmental delays, or who have conditions associated with developmental delays. Anyone (a parent, doctor, caregiver, teacher or friend) can make a referral.

Locations/Contact Info 

  

CC4C Care Coordination for Children Mecklenburg County 

The Care Coordination for Children program is available to families with children that are at high risk for developmental delays. Services are provided primarily in the client’s home.  Children birth to age three who are at risk for developmental delay or disability, long term illness and/or social, emotional disorders and children ages birth to five who have been diagnosed with developmental delay or disability, long term illness and/or social, emotional disorder may be eligible for the program. 

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CC4C Care Coordination for Children NC 

  

Levine Children’s Hospital Neonatal Follow up Clinic 

Medical and developmental evaluation of all newborns until 3 years old currently. Assessment from physical therapists and speech language pathologists.  Referrals to specialty providers, coordination of care and services in the community. Phone: 704.381.1450 

  

Novant Health Developmental and Behavioral Pediatrician 

Offers medical evaluations for NICU graduates with developmental delays. 

  

Family Connection South Carolina 

Families with shared experiences are uniquely qualified to help each other, offering support, guidance, and encouragement. Because of this, all programs and services are family centered and based on the concept of parent to parent support.  Whether you’re just beginning your journey or have a question along the way, we offer a variety of services and resources that can help. 

  

Charlotte Mecklenburg Schools Exceptional Children’s Program 

Parents of children ages three to twenty-one years sometimes suspect delays in the development of speech-language, readiness, motor, social-behavior, academic, and self-help skills. Concerned parents can contact the student’s home school or Charlotte-Mecklenburg Schools (CMS) Exceptional Children Program to request evaluations (or re-evaluations) to be considered for Exceptional Children services. 

  

North Carolina Public School Exceptional Children (Special Education Services) 

  

South Carolina Department of Education Special Education Services 

  

GPS: Guiding Parents to Services 

This program is designed for Mecklenburg County parents with children 0-5 who are part of the complex, sometime frightening world of autism. The Autism Coordinator offers a range of services including; parent education, support, and referrals to early intervention services and other community agencies, monthly workshops addressing topics of interest, training to professionals in the field, and collaborations with agencies to enhance services to families. 

  

Gigi’s Playhouse Charlotte 

Programs at GiGi’s Playhouse offer foundational learning opportunities for individuals with Down syndrome, their families and the community. Gigi’s Playhouse Programs are a place for parents/caregivers to share ideas and network with one another. Caregivers can communicate their needs, questions and concerns with one another, and promote connections to be made in support of each other. GiGi’s programs embrace the family and help aid the development of a healthy, successful relationship between parents, individuals with Down syndrome and siblings. 

  

ECAC 

ECAC is a private non-profit parent organization committed to improving the lives and education of ALL children through a special emphasis on children with disabilities and special healthcare needs. ECAC affirms the right of all individuals, from all backgrounds and cultures, with or without disabilities, to an appropriate education and other needed services.  ECAC seeks to make that right a reality by providing information, education, outreach, and support to and for families with children across the state of North Carolina. 

  

Council for Children’s Rights 

Improve the lives and futures of children in Mecklenburg County through legal representation, individual advocacy, and by addressing community-wide issues through research and policy work. Council for Children’s Rights envisions a community committed to standing up, speaking out, and acting to ensure child’s right to be safe, healthy, and well-educated. 

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InReach 

InReach provides a wide variety of supports and services across the lifespan for individuals with intellectual/development disabilities and their families. Services take place in a wide variety of settings based on the needs of the individual, the funding requirements and in some instances, availability of housing. Focus on each individual’s unique needs and deliver the highest quality services possible by ensuring that each individual receives the right supports, at the right time and frequency by a caring qualified staff member in the most independent setting appropriate. Using the Person-Centered Plan or Individual Support Plan as the map, we provide choice and ensure a good fit between the individual’s personal preferences and support needs and the staff providing supports. 

  

First in Families 

A First In Families local chapter can support any family in which one family member has a developmental disability or delay, or is at risk of the same, or has a traumatic brain injury. Families or the individual must live in a county served by the Chapter and they must meet financial eligibility requirements. The residence must be a home, not a licensed facility. 

  

Easter Seals UCP 

Easter Seals UCP is a leading provider of disability related-services in the communities in which we serve. Our purpose is to provide meaningful and exceptional services so that children and adults living with disabilities and mental health challenges can live, learn, work and play in their communities. 

  

IDEA 

S. Department of Education’s Individuals with Disabilities Education Act (IDEA) website, which brings together IDEA information and resources from the Department and our grantees. Whether you are a student, parent, educator, service provider, or grantee, you are here because you care about children with disabilities and their families and want to find information and explore resources on infants, toddlers, children, and youth with disabilities. 

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MyPreemie App by Graham's Foundation

MyPreemie is a complete toolkit for the unique practical and emotional needs of families of premature babies, available in English and Spanish. Includes a pocket guide to issues of prematurity; suggest questions for providers; a baby book diary; trackers; to-do lists; and ways to share information with family and friends.​

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Dear NICU Mama

Dear NICU mama is a nonprofit and global community that provides immediate peer support to NICU mothers and their families through diverse programs and services. Such services include a private support group with over 6000 members worldwide,
dedicated to provide encouragement and peer-to-peer support.
Website: https://www.dearnicumama.com

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